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howisclaire

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How's Claire Doing?

Created on 2007-03-22 19:21:08 (#12556547), last updated 2009-06-15

134 comments received, 33 comments posted

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142 Journal Entries, 2 Tags, 0 Memories, 0 Virtual Gifts, 4 Userpics

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Name:	How is Claire?

Bio

Come here to see how Claire is growing, and how we are coping with her epilepsy and infantile spasms. Claire was born in November of 2006, and diagnosed in March 2007. We have not yet been able to get her seizures under control, despite trying many medications. She is profoundly mentally and physically delayed. As of Feb 2008 she is g-tube fed. In August 2008 we started the ketogenic diet.
Claire has taught me some amazing things about life, and what really matters. She is the most beautiful girl on the face of the earth.
We also have a new baby girl- Nora was born in September 2008. She is typically developing, and a real handful!

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Interests (4):

cerebral palsy, infantile spasms, ketogenic diet, west syndrome

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